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The organization you have known since its founding as the Myotonic Dystrophy Foundation has a new name, a new logo and a new look! 

After Julia Thorsness’ husband Jim died from complications of myotonic dystrophy at 59, she decided to put her professional and personal experience to work to help DM families.

A review synthesizes the literature into a molecular genetics model of CDM and suggests more answers lie in research on DMPK locus epigenetics.

A concise summary of genome editing efforts in DM1 to date and a look at gaps in getting to an approved therapeutic.

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