Myotonic Phone Buddies

Myotonic is connecting community members around the nation with 1-to-1 support. We encourage anyone who needs support to reach out to access this critical service. We will try to match you with a phone buddy based on your situation and preference.

We have buddies ready to connect about:

Interested in becoming a Myotonic Phone Buddy?

Contact Myotonic Program Director Leah Hellerstein by email or phone: 415-800-7777.

Need to talk this week?

Myotonic offers a professionally-staffed Warmline for people living with myotonic dystrophy, their caregivers, medical professionals and others to ask questions, find support and guidance and, when appropriate, be connected to additional resources and services. Consider contacting the Warmline if you need information and guidance on DM-related questions, would like help identifying resources or would just like support and a sympathetic ear from someone who understands the world of myotonic dystrophy and what it is like to live with DM.

Connect with other Myotonic community members.

If you would like to meet up in person, Myotonic now has 22 active support groups around the United States, and one in Canada. For those who do not live near one of our existing support groups, our online support community is available at any time.

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